While collecting data is key to evaluating the success of our program, we realized health care teams are stretched without having to collect additional data. Consistent data is important in order to compare data across communities, regions and the country to find best practices. We have built a central database that collects anonymous data to analyze and report program results. We have streamlined data collection processes to be more efficient, and we work toward a vision of being able to import anonymized data directly into our database without administrative effort. We are also looking at provincial healthcare data coalitions to partner with us.

With the CHANGE Program transitioning from research to being part of primary care, the reality of day to day life impacts data collection. Covid and the emergence of virtual visits has played a role. Bloodwork has been prioritized to only that which was deemed essential. This has all impacted on the ability to gather and report on data.